Drew is an amazing young man battling with CF. When we started to put this event together I asked his mom to share their story with us. Colleen thought it best to have Drew tell us everything from his point of view.
My Life with Cystic Fibrosis
Hello, my name is Drew and I am 11 years old. I have a disease called Cystic Fibrosis but I call it CF. This disease is hard because I cough more than other kids and adults do. A lot of times I bring up lots of mucus and people look at me sometimes like I am contagious. I get sick faster or easier than other people.Sometimes I feel different than other kids because of my disease, but sometimes I forget that I have cystic fibrosis. I have to eat a lot everyday so I can gain weight. I need to eat a lot of food so I can stay healthy. Having to keep up my weight is a struggle everyday but I try even if I am not feeling good.
I go to the doctors a lot and have had to have surgeries. I have been through a lot of things, but I can handle it. I have to do treatments twice a day everyday and sometimes more than that depending on how I feel. I also take lots of pills. I have great parents and an awesome brother. They help me take my medicine and do my treatments. I also have great doctors that keep me healthy. Sometimes I have to go to the hospital for a "tune up" and get a pic line. I don't like them but it makes me feel better.
I hope that someone finds a cure for cystic fibrosis so I can feel better. Also, so all kids and adults can have a cure to. I know someday there will be one!